update: {new normal} how it feels to be me

31days new normalThis post is for any gracious person who read this series last October.

It’s been a year since my first brain scan, and I thought I’d celebrate by having another one done later this month.  Ain’t no party like a Lauren Lutz party…

But seriously, y’all.  This party could happily stop with a diagnosis, and I’m encouraged that it could soon.  I’m almost through with another round of tests that have included about 2 gallons of bloodwork and a skin punch biopsy.

The results for the biopsy will be in at the end of this week, and I expect it to show damage to the network of small fiber nerves.  (I think I said that right.)  While that will technically give a diagnosis, it’s really only like a sub-diagnosis under the Big Question Mark.  I’ve been working jigsaw and crossword puzzles this week, and I’m appreciative of every piece that pops into place in health matters, too!

puzzle perspective

In other happy news, it has been thoroughly proven that I do not have Diabetes, and for that I am very thankful.  My grandfather is a severely brittle diabetic (I think I said that right) and I’ve seen enough to know that them’s tough cookies.  {*Comic Relief Alert*} During one of the bloodwork days, I was having 13 vials of blood drawn after about 8 vials drawn 3 days prior.  I was about 2 seconds from passing out when I started vomiting.  A second nurse ran to help us and boy, was she was overjoyed to hold my barf bag!  Me an’ my raging stomach virus rescued her from having to stick the head of the Board of Directors for the hospital.  You’re welcome, Nervous Nurse Nelly.

My joint and muscle pain continues, but recently I’ve recognized that at least some of the pains are recurring in the same spots.  The weird new pains feel like bee stings (infrequent, but annoying!) and an instant locking up of a joint.  Me hopping through the local discount store on one good knee audibly cracks me up, even as I’m wincing holding the “cramping” knee.

My vertigo came back for a few weeks, but I think it’s leaving again. *jumps & clicks heels together* It is so embarrassing when you look like you’re drunk and you’re not.  Numbness has become a problem from time to time in my limbs.  That makes it surprisingly hard to sleep sometimes!

I had one vision change where I couldn’t focus on the face I was looking at.  That only lasted for 3-5 seconds, and then I was fine.  Very odd, and really hoping that one never happens again.

The most frustrating symptoms for me right now are barely noticeable to anyone else.  I can tell that sometimes I’m not pronouncing things the way I want to, and I’m dropping smaller objects more than what I think is normal for me.  Those two seem a little scary.

Am I crazy to post this on the internet for the world to see?  Perhaps a career coach may say I’m ruining my chances at future employment. Maybe friends or family will exclude me from activities or opportunities because they’ll assume I can’t or shouldn’t participate.

Displaying my weaknesses is worth those risks to me if it helps you see those around you a little more compassionately.  Invisible illnesses are in front of you at the cash register, beside you at the baseball game, above you in the company hierarchy, and behind you in the generations to come.  What harm could it do to assume that everybody needs a little grace?

Displaying my weaknesses is worth those risks to me if it helps you hear one more time that God is worthy of your trust.  I don’t worry that whatever is wrong with me will make me ineligible for life.  God has a place and a way for me to do my thang, and is perfectly capable of using my strengths and weaknesses.  I trust that he’ll do that.

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3 thoughts on “update: {new normal} how it feels to be me

  1. I appreciate the update. I have been wondering how you have been doing. I ll continue to pray. I hope you get good news and news that makes sense. I know as you walk with God either limping or at ease you will have an impact on those around you. You do here.

  2. Oh my gosh! I so appreciate this…Displaying my weaknesses is worth those risks to me if it helps you hear one more time that God is worthy of your trust…. I get fussed at all the time for being to “public” with my struggles. I love ya!

  3. This is a beautiful post! If more people were willing to show what life is really like, then it could really serve as a testimony for others. I can definitely admire anyone who is willing to admit what’s going on and how God is working in the midst of their struggle because then, when they get the victory, others can see and believe even more in our God.

    Psalm 34:8 (KJV)
    O taste and see that the Lord is good: blessed is the man that trusteth in him.

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